Peter Frampton to receive The Myositis Association’s Heroes in the Fight 2023 Patient Ambassador Award on September 9
Fr. Stu, a movie about a patient with IBM, to be released on April 13
A true to life story of an unlikely priest who struggled with Inclusion Body Myositis (IBM) is making its way to the big screen this Easter weekend. This movie, Fr. Stu, produced by and starring Mark Wahlberg and directed by Rosalind Ross, tells the story of Father Stuart Long, an unlikely priest from Montana who led a colorful life prior to his ordination. While in the seminary, he began to display symptoms of a muscle disease which was eventually diagnosed as IBM. “It’s exciting to see IBM feature so prominently in this story of transformation. This gives people the glimpse of what our patients go through with this disease and is a powerful story of redemptive suffering and the power of the human spirit,” says Dr. Myma Albayda. “We hope many get a chance to watch the movie and support it.”
Myositis, Immunosuppressants and COVID Vaccine Response webinar
Myositis Support and Understanding (MSU) i recently hosted a panel of John Hopkins physician researchers from the Myositis Center including Caoilfhionn Connolly, MD, MSc, Lisa Christopher-Stine, MD, MDS, and Julie Paik, MD, MHS, who presented their results on COVID vaccine responses in myositis patients and answered questions.
Joining the Myositis Center team and their main collaborator on the study is Dorry Segev, MD PhD, Director, Epidemiology Research Group in Organ Transplantation (ERGOT), Johns Hopkins University. Dr. Segev’s team at ERGOT is studying the antibody levels in transplant patients to determine if a third vaccine could help these immunocompromised patients.
Meet Bitsy and Maya
JANUARY 12, 2021 – Maya is a Fidos for Freedom service dog. She helps with laundry, retrieving items in the house, opening and closing the fridge, taking things to others, taking off shoes, opening doors and so much more.
Johns Hopkins Myositis Center clinicians partner with patients to solve the mystery of Myositis
AUGUST 17, 2020 – From the very beginning, the Center’s clinicians and researchers invited all of their patients to be part of a large, long-term registry, a research database that included blood samples, DNA, and clinical information acquired during clinic visits. This database now includes information from about 2,500 patients.
Johns Hopkins doctors hope guitarist Peter Frampton’s name will spark interest in his rare disease
FEBRUARY 28, 2019 – With a celebrity guitarist as their new front man, doctors at the Johns Hopkins Myositis Center are hopeful they will be able to raise awareness about and research funding for a rare and misunderstood condition that causes muscle weakness.
Dr. Lisa Christopher-Stine: Polymyositis? It’s more likely something else
FEBRUARY 20, 2019 – True polymyositis is rare, so it’s important to carefully consider other likely diagnoses, according to Lisa Christopher-Stine, MD.